Hypophosphatasia as a rare cause of neonatal seizures
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When I found out I was pregnant, the thought of my innocent little baby having an ultra-rare disease never crossed my mind. I was asking myself questions like “Is it going to be a boy or a girl?”, “Am I going to be a good mother?”, “What am I going to name him/her?”. Then during …
When I found out I was pregnant, the thought of my innocent little baby having an ultra-rare disease never crossed my mind. I was asking…
To read more please click on the link below. Read Article
To read more please click on the link below. Read Article
Two years ago, at the age of 49, I was diagnosed with hypophosphatasia. Married to my high school sweetheart and with two grown sons, nothing…
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The US Hypophosphatasia Foundation
141 Hawkins Place, #267
Boonton, NJ 07005, USA.
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1719 NJ-10,
Parsippany, NJ 07054
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