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Midwest 2 Region Patient Meeting

Starbucks - Pavilion Shopping Center, 2692 Madison Rd. Rockwood Cincinnati, OH

Region Lead, Cindy Reasor, will host a Midwest 2 get-together on September 30, 2023 immediately following the Unmask HPP event at approximately 3pm EDT at…

2023 Cannonball 5k Run, Roll, or Stroll

Online

It’s time to Run, Roll or Stroll! Registration for Soft Bones second annual Cannonball 5k Run, Roll or Stroll is open NOW! Register with the…

Soft Bones 15th Annual Golf Classic 2023

Somerset Hills Country Club 180 Mine Mount Rd, Bernardsville, New Jersey

Golf for a great cause! Join Soft Bones at the beautiful Somerset Hills Country Club in Bernardsville, NJ for the 15th Annual Golf Classic to…

Region Lead Bi-Monthly Call

Online

FOR SOFT BONES REGION LEADS ONLY: Join the Region Lead bi- monthly call on Thursday October 12th from 7-8 pm EST. For questions reach out…

HPP AND ME Zoom Tutorial

Online

Soft Bones will be hosting a HPP AND ME Zoom tutorial on Tuesday, October 17th, at 1:00 p.m. EDT. Learn more about the HPP community,…

HPP AND ME Live Zoom Chat

Online

Join the HPP community in an HPP AND ME live chat on Monday, October 30th, 2023 at 8:00 p.m. EDT. Meet the faces behind the…

Unmask HPP Webinar: Living with HPP

Online

Register Today For This Informative Webinar. Presenter: Aristedes Maniatis, MD, FAAP, Pediatric Endocrinology Are you navigating an HPP (hypophosphatasia) diagnosis?  Whether you're new to HPP…

Unmask HPP Webinar: Caring for Someone with HPP

Online

Register Today For This Informative Webinar. Presenter: Freda Hannafon, FNP-C, Endocrinology Are you navigating an HPP (hypophosphatasia) diagnosis?  Whether you're new to HPP or a…