Meet Me Monday
Come meet the Soft Bones’ staff members, Region Leads, moderators, and volunteers that make our mission a reality. There are many individuals who work behind the scenes to bring patients resources, facilitate conversations and meet ups, and more. Get to know them here and on our various social media accounts, pages, and forums.
Meet Cindy Reasor
Meet Cindy Reasor Relationship to HPP: I have HPP. Both of my adult daughters and two granddaughters also have this...
Read MoreMeet Lucy George
Meet Lucy George Relationship to HPP: I am the Patient Engagement Coordinator here at Soft Bones! Joined: I have been...
Read MoreMeet Blynda Kellner
Meet Blynda Kellner Relationship to HPP: I was diagnosed with HPP around 6 months old. Joined: I found Soft Bones,...
Read MoreMeet Margaret Robb
Meet Margaret Robb What is your relationship to HPP? I am the Communications Manager and Patient/Caregiver Navigator. I create content...
Read MoreMeet Sue Krug
Meet Sue Krug Relationship to HPP: I am a patient with HPP. I have two mutations, one from each of...
Read MoreMeet Charlene Waldman
Meet Charlene W. Relationship to HPP: I have worked in the rare bone disease field for many years serving as...
Read MoreMeet Judith Harris
Meet Judith Harris Relationship to HPP: Region Lead for Northeast. I have been diagnosed with juvenile-onset HPP. Joined: May 2019....
Read MoreMeet Nicole Belting
Meet Nicole Belting Relationship to HPP: Region Lead for Midwest 1 Joined: March of 2023. Last summer I hosted my...
Read MoreMeet Denise Goodbar
Meet Denise Goodbar Relationship to HPP: Executive Director at Soft Bones Joined: March of 2015 What do you want the...
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