Meet Me Monday

Meet Me Monday

Come meet the Soft Bones’ staff members, Region Leads, moderators, and volunteers that make our mission a reality. There are many individuals who work behind the scenes to bring patients resources, facilitate conversations and meet ups, and more. Get to know them here and on our various social media accounts, pages, and forums. 

Meet Sue Krug

Meet Sue Krug Relationship to HPP: I am a patient with HPP. I have two mutations, one from each of...

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Meet Charlene Waldman

Meet Charlene W. Relationship to HPP: I have worked in the rare bone disease field for many years serving as...

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Meet Judith H.

Meet Judith H. Relationship to HPP: Region Lead for Northeast. I have been diagnosed with juvenile-onset HPP. Joined: May 2019....

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Meet Nicole B.

Meet Nicole B. Relationship to HPP: Region Lead for Midwest 1 Joined: March of 2023. Last summer I hosted my...

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Meet Denise Goodbar

Meet Denise Goodbar Relationship to HPP: Executive Director at Soft Bones Joined: March of 2015 What do you want the...

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