Caregiver Corner

Soft Bones is excited to showcase the many caregivers that selflessly help others living with HPP. Because of them, individuals receive the necessary emotional, physical, and psychological support to thrive daily. Whether they are a caregiver by profession or taking care of a loved one, we want to recognize their work and dedication. Nominate a caregiver today!

National Patient Meeting 2023 in Phoenix, Arizona

Nominate a Caregiver

Information is required to contact caregiver.

Caregiver's First Name

Caregiver Last Name

Caregiver's Email (please double check email is correct)

Caregiver's Phone Number

What is the best way to contact caregiver?

Text (Message and data rates may apply) Email

Nominator's Name

Notification

Caregiver Resources

The Caregiver Action Network (CAN) is a nonprofit organization on a mission to improving the quality of life for those caring for a loved one. They provide resources for family caregivers to help their loved ones and themselves. Check out their tool box and their Rare Disease Caregivers guide.

Caregiver Corner- Ellen K.

My parents and I have one HPP gene. My younger sister has two HPP mutations. With her in a wheelchair...