HPP Community
Soft Bones amplifies the voice and the needs of the HPP community. It is our goal to empower, educate and connect with the goal of a cure.
Bone Zone
HPP AND ME
Read about HPP patients, their stories of diagnosis and living with the disease in our blog, Bone Zone.
Make A Difference.
Photo Gallery
Read about HPP patients, their stories of diagnosis and living with the disease in our blog, Bone Zone.
Meet Me Monday
Come meet the Soft Bones’ staff members, Region Leads, moderators, and volunteers that make our mission a reality.
Appy Hour
OnlineThe myHPP app was developed by patients and physicians to transform patient care and inform hypophosphatasia research. It puts patients in charge of tracking their…
Appy Hour
OnlineThe myHPP app was developed by patients and physicians to transform patient care and inform hypophosphatasia research. It puts patients in charge of tracking their…
Appy Hour
OnlineThe myHPP app was developed by patients and physicians to transform patient care and inform hypophosphatasia research. It puts patients in charge of tracking their…
Midwest 1 Region Patient Meeting
Blackberry Trails Park 2535 Caliendo Cir, Montgomery, IL, United StatesMidwest 1 Region Meet-Up Opportunity Do you live in Illinois, Indiana, Iowa, Minnesota, or Wisconsin? Join Region Lead, Nicole Belting, on Saturday August 17,…
Northeast Region Zoom Meeting and Chat
OnlineDo you live in Connecticut, DC, Delaware, Maine, Maryland, Massachusetts, New Hampshire, New Jersey, New York, Pennsylvania, Rhode Island, Vermont, or Virginia? Join Region…
Join us for the 16th Annual Golf Classic 2024
Somerset Hills Country Club 180 Mine Mount Rd, Bernardsville, New JerseyRegistration is now open for the 16th Annual Golf Classic on Monday, September 23, 2024. This is our largest and most important fundraiser. All proceeds…
Save the Date! Northeast Region Meeting
Soft Bones Headquarters 1719 NJ-10, Parsippany, United StatesSave the Date! Do you live in Connecticut, DC, Delaware, Maine, Maryland, Massachusetts, New Hampshire, New Jersey, New York, Pennsylvania, Rhode Island, Vermont, or Virginia? …
Calendar of Events
We are continually creating and updating resources and events to provide patients, caregivers and the medical community with the latest information about HPP.
