HPP Community

HPP Community

Soft Bones amplifies the voice and the needs of the HPP community. It is our goal to empower, educate and connect with the goal of a cure.

Bone Zone

Read about HPP patients, their stories of diagnosis and living with the disease in our blog, Bone Zone.

HPP AND ME

Read about HPP patients, their stories of diagnosis and living with the disease in our blog, Bone Zone.

Make A Difference.

Photo Gallery

Read about HPP patients, their stories of diagnosis and living with the disease in our blog, Bone Zone.

Meet Me Monday

Come meet the Soft Bones’ staff members, Region Leads, moderators, and volunteers that make our mission a reality.

Today

Midwest 2 Region Zoom Meeting and Chat

Online

Do you live in Kentucky, Michigan, Ohio, or West Virginia? Join Region Leads Sharon Talkington and Nichole Macknight for a virtual Zoom Meeting on June…

2024 Soft Bones National Patient Meeting

Great Wolf Lodge, Mason Ohio 2501 Great Wolf Dr, Mason, OH, United States

Join us for our 2024 Soft Bones National Patient Meeting on July 12th–July 13th, 2024 in Mason, OH. This important event will bring together HPP…

HPP AND ME Live Zoom Chat

Online

Register for your spot today! Join us on July 25th at 3 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and…

Northwest Region Zoom Meeting and Chat

Online

Do you live in Alaska, Idaho, Northern California, Montana, Oregon or Washington?    Join Region Leads, Hayley Thornton and Ann Haak on July 25th at…

Midwest 1 Region Patient Meeting

Blackberry Trails Park 2535 Caliendo Cir, Montgomery, IL, United States

Midwest 1 Region Meet-Up Opportunity  Do you live in Illinois, Indiana, Iowa, Minnesota, or Wisconsin?   Join Region Lead, Nicole Belting, on Saturday August 17,…

Join us for the 16th Annual Golf Classic 2024

Somerset Hills Country Club 180 Mine Mount Rd, Bernardsville, New Jersey

Registration is now open for the 16th Annual Golf Classic on Monday, September 23, 2024. This is our largest and most important fundraiser. All proceeds…

Save the Date! Northeast Region Meeting

Soft Bones Headquarters 1719 NJ-10, Parsippany, United States

Save the Date! Do you live in Connecticut, DC, Delaware, Maine, Maryland, Massachusetts, New Hampshire, New Jersey, New York, Pennsylvania, Rhode Island, Vermont, or Virginia? …

Calendar of Events

We are continually creating and updating resources and events to provide patients, caregivers and the medical community with the latest information about HPP.