HPP Community
Soft Bones amplifies the voice and the needs of the HPP community. It is our goal to empower, educate and connect with the goal of a cure.
Bone Zone
HPP AND ME
Read about HPP patients, their stories of diagnosis and living with the disease in our blog, Bone Zone.
Make A Difference.
Photo Gallery
Read about HPP patients, their stories of diagnosis and living with the disease in our blog, Bone Zone.
Meet Me Monday
Come meet the Soft Bones’ staff members, Region Leads, moderators, and volunteers that make our mission a reality.
Denim & Diamonds – Registration Open
Harvest Hall, Chester, NJ 100 Rte 24, Chester, NJ, United StatesRegistration is now open! It's time to put on your cowboy boots and dance for a great cause! Join us for the 2nd Annual Soft…
2024 Soft Bones National Patient Meeting
Great Wolf Lodge, Mason Ohio 2501 Great Wolf Dr, Mason, OH, United StatesJoin us for our 2024 Soft Bones National Patient Meeting on July 12th–July 13th, 2024 in Mason, OH. This important event will bring together HPP…
Join us for the 16th Annual Golf Classic 2024
Somerset Hills Country Club 180 Mine Mount Rd, Bernardsville, New JerseyRegistration is now open for the 16th Annual Golf Classic on Monday, September 23, 2024. This is our largest and most important fundraiser. All proceeds…
Save the Date! Northeast Region Meeting
Soft Bones Headquarters 1719 NJ-10, Parsippany, United StatesSave the Date! Do you live in Connecticut, DC, Delaware, Maine, Maryland, Massachusetts, New Hampshire, New Jersey, New York, Pennsylvania, Rhode Island, Vermont, or Virginia? …
Calendar of Events
We are continually creating and updating resources and events to provide patients, caregivers and the medical community with the latest information about HPP.
