HPP Community
Soft Bones amplifies the voice and the needs of the HPP community. It is our goal to empower, educate and connect with the goal of a cure.
Bone Zone
HPP AND ME
Read about HPP patients, their stories of diagnosis and living with the disease in our blog, Bone Zone.
Make A Difference.
Photo Gallery
Read about HPP patients, their stories of diagnosis and living with the disease in our blog, Bone Zone.
Meet Me Monday
Come meet the Soft Bones’ staff members, Region Leads, moderators, and volunteers that make our mission a reality.
HPP Empowered: September 19, 2024 at 7:00 PM ET
OnlineRegister Today For This Informative Webinar. Have you or a loved one been diagnosed with hypophosphatasia (HPP)? Join Alexion Pharmaceuticals, Inc. as they host their…
Join us for the 16th Annual Golf Classic 2024
Somerset Hills Country Club 180 Mine Mount Rd, Bernardsville, New JerseyRegistration is now open for the 16th Annual Golf Classic on Monday, September 23, 2024. This is our largest and most important fundraiser. All proceeds…
HPP AND ME Live Zoom Chat
OnlineRegister for your spot today! Join us on September 24th at 3 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and…
HPP Empowered: September 28, 2024 at 1:00 PM ET
Mitchell's Steakhouse 1408 Polaris Pkwy, Columbus, OHRegister Today For This Informative Webinar. Have you or a loved one been diagnosed with hypophosphatasia (HPP)? Join Alexion Pharmaceuticals, Inc. as they host a…
2024 Cannonball 5K Run, Roll, or Stroll
OnlineIt’s time to Run, Roll, or Stroll! Registration for Soft Bones 3rd annual Cannonball 5K Run, Roll or Stroll is NOW OPEN! From September 29,…
Midwest 2 Region Zoom Meeting and Chat
OnlineDo you live in Kentucky, Michigan, Ohio, or West Virginia? Join Region Leads, Nichole Macknight and Sharon Talkington for a Midwest 2 Zoom Chat…
Southeast Region Zoom Meeting and Chat
OnlineDo you live in Alabama, Georgia, Florida, Mississippi, North Carolina, South Carolina, or Tennessee? Join Region Leads, Blynda Kellner and Scott Galvin, for a…
Appy Hour
OnlineThe myHPP app was developed by patients and physicians to transform patient care and inform hypophosphatasia research. It puts patients in charge of tracking their…
Southwest Region Meeting
Buca di Beppo Mesa 1730 South Val Vista Drive, AZ, United StatesSouthwest Region Meet-Up Opportunity Do you live in Arizona, Hawaii, Nevada, New Mexico, Southern California or Utah? Join Region Leads, Sue Krug and Amy…
Join Us for an In-Person Northeast Region Meeting
Soft Bones Headquarters 1719 NJ-10, Parsippany, United StatesRegistration is now open for the Northeast in-person meeting on October 26, 2024. Do you live in Connecticut, DC, Delaware, Maine, Maryland, Massachusetts, New…
Calendar of Events
We are continually creating and updating resources and events to provide patients, caregivers and the medical community with the latest information about HPP.
