Dental outcomes for children receiving Strensiq® for Hypophosphatasia
To read more please click on the link below.
Read Article
Related Articles
Patient of the Month- Evan W.
If you would like to make a donation to Soft Bones in honor of Evan, please click the button below! Donate Here My husband Will…
Blynda’s Journey with HPP
When I was born in 1968, my parents assumed everything was fine. They took me home and being her 1st child, my mom thought everything…
Living with HPP: Sherri P.
My name is Sherri Palackdharry, I have Hypophosphatasia along with two of my daughters, Maya, 16 and Syreeta, 21. Our journey began when Maya was…
A Family’s Fight Against HPP
On December 21, 2011 our daughter Clara B. was born; at the time we believed she was a beautiful healthy baby girl. Little did we…
Improving care pathways for people living with rare bone diseases (RBDs): outcomes from the frst RBD Summit
To read more please click on the link below.Read Article
Responses