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    Tag: Strensiq

    Adult Hypophosphatasia: An Uncommon Bone Disease Hiding in Plain Sight – Presented by American Bone Health

    Denise Goodbar April 28, 2022
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    Altered Thyroid Function Tests Observed in Hypophosphatasia Patients Treated with Asfotase Alfa

    To read more please click on the link below. Read Article

    Denise Goodbar December 16, 2021
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    Understanding the Roles of PANTHERx Rare and Alexion, AstraZeneca Rare Disease OneSource™

    Please download and view this fact sheet with the link below. Download Fact Sheet

    Denise Goodbar November 3, 2021
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    For Those Living With HPP and/or on Strensiq: Learn More About the COVID-19 Vaccines – September 2021

    To read more please click the link below. View News Article

    Denise Goodbar September 17, 2021
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    For Those Living With HPP and/or on Strensiq: Learn More About the COVID-19 Vaccines – September 2021

    To read the publication please click on the link below. View Resource

    Denise Goodbar September 17, 2021
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    Medical ID and Hospital Preparedness

    Please download and view this fact sheet with the link below. Download Fact Sheet

    Denise Goodbar September 2, 2021
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    Medical ID and Hospital Preparedness

    To view the emergency card please click on the link below. Medical ID and Hospital Preparedness

    Denise Goodbar September 2, 2021
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    Emergency Scenario Preparedness Guide and Action Plan

    Please download and view this fact sheet with the link below. Download Fact Sheet

    Denise Goodbar September 2, 2021
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    Emergency Scenario Preparedness Guide and Action Plan

    To view the emergency card please click on the link below. Emergency Scenario Preparedness Guide and Action Plan

    Denise Goodbar September 2, 2021
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    Dental outcomes for children receiving Strensiq® for Hypophosphatasia

    To read more please click on the link below. Read Article

    Denise Goodbar June 30, 2021
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    The US Hypophosphatasia Foundation
    141 Hawkins Place, #267
    Boonton, NJ 07005, USA.

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