Welcome to the Bone Zone
Read about HPP patients, their stories of diagnosis and living with the disease in our blog, The Bone Zone.
All Our Stories
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Patient of the Month- Janni K.
If you would like to make a donation to Soft Bones in honor of Janni, please click the button below!...
Read MorePatient of the Month- Emily H.
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Read MorePatient of the Month- Lindsey W.
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Read MorePatient of the Month- Aubrey B.
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Read MorePatient of the Month- Cass S.
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Read MorePatient of the Month- Cannon S.
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Read MorePatient of the Month- Judith H.
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Read MorePatient of the Month- Connor Eli H.
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Read MorePatient of the Month- Peyton W.
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Read MorePatient of the Month- Mason P.
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Read MorePatient of the Month- Natalie S.
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Read MorePatient of the Month- August B.
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Read MorePatient of the Month- Evan W.
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Read MorePatient of the Month- Haley G.
My name is Haley Gast and I have been diagnosed and living with HPP for just over 33 years. Prior...
Read MorePatient of the Month- Quinn H.
My name is Quinn Hoover and I am living with HPP. I was born January 12th, 2009, in Omaha, Nebraska. ...
Read MorePatient of the Month- Carol L.
My HPP story started at a very young age. I was quite young and our bedroom was upstairs, and the...
Read MorePatient of the Month- Sharon M.
My Journey with my Soft Bones: The only hint my parents had that something was wrong with me was my...
Read MorePatient of the Month- Rachel S. and Christine S.
Hi Everyone, Instead of Rachel and I (Christine) writing two separate stories, we thought that since our lives are so...
Read MorePatient of the Month- Morgan S.
Hello, My name is Morgan Salomon, and I am 16 years old, and I’d like to tell you a little...
Read MorePatient of the Month- Nicole S.
I was born premature, broke bones easily throughout childhood, and had a few setbacks with development. My parents didn’t think...
Read MorePatient of the Month- Denise K.
Hi! I’m Denise and I was diagnosed with childhood-onset hypophosphatasia (HPP) at age 50. As a child, I remember...
Read MorePatient of the Month- Nellie S.
Hi, I am Nellie and this is my HPP story: I absolutely love spending time with my family. My husband...
Read MorePatient of the Month- Chris D.
I became aware of HPP when I was about 38 years old, but in retrospect, I’ve been on this journey...
Read MorePatients of the Month- Amy and Suzanne
Hi, we are twin sisters Amy and Suzanne, we have been dealing with symptoms of HPP for a lifetime. Our...
Read MoreLiving with HPP- Sierra
Hello..my name is Shelly and I am Sierra’s mother..I had gotten pregnant with Sierra and thought everything was fine..the ultrasounds...
Read MoreLiving with HPP- Courtney
In the spring of 2020, I was officially diagnosed with Hypophosphatasia through genetic testing. In retrospect, the signs and symptoms...
Read MoreLiving with HPP- Nele
My name is Nele from Belgium and I have hypophosphatasia. The first time I heard about HPP the look on...
Read MoreLiving with HPP- Amy W.
My name is Amy. I am a 53 year old newly diagnosed member of the HPP community. I have been...
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