Asfotase alfa has a limited effect in improving the bowed limbs in perinatal benign hypophosphatasia: A case report
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Have you ever had the ultrasound tech stop what she was doing, and say she needed to go get the doctor? Well, I have. And…
When I found out I was pregnant, the thought of my innocent little baby having an ultra-rare disease never crossed my mind. I was asking myself questions like “Is it going to be a boy or a girl?”, “Am I going to be a good mother?”, “What am I going to name him/her?”. Then during …
When I found out I was pregnant, the thought of my innocent little baby having an ultra-rare disease never crossed my mind. I was asking…
If you would like to make a donation to Soft Bones in honor of Emily, please click the button below! Donate Here Hi, this is…
If you would like to make a donation to Soft Bones in honor of August, please click the button below! Donate Here My name is…
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The US Hypophosphatasia Foundation
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Boonton, NJ 07005, USA.
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Parsippany, NJ 07054
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