Patient of the Month- Alison S.
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Patient of the Month- Amedie P.
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Caregiver Corner – Kara S.
1. What is your relationship to HPP? My son Quinn was diagnosed with HPP 13 years ago at the age of 3 after exhibiting symptoms since…
Patient of the Month- Rebecca
If you would like to donate to Soft Bones in honor of Rebecca, please click the button below! Donate Here Sometimes the hardest things in…
Patient of the Month- Evie M.
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Patient of the Month- Cassi K.
If you would like to donate to Soft Bones in honor of Cassi, please click the button below! Donate Here Hypophosphatasia Patient of the Month:…
Caregiver Corner- Darrell K.
What is your relationship to HPP? My wife, Blynda, has hypophosphatasia (HPP). She has two genes and was diagnosed in infancy. Both our adult children carry…
Patient of the Month- Adeline H.
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Whole genome sequencing in adults with clinical hallmarks of hypophosphatasia negative for ALPL variants
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Safety, pharmacokinetics, and pharmacodynamics of efzimfotase alfa, a second-generation enzyme replacement therapy: phase 1, dose-escalation study in adults with hypophosphatasia
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