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HPP Empowered: September 19, 2024 at 7:00 PM ET

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Register Today For This Informative Webinar. Have you or a loved one been diagnosed with hypophosphatasia (HPP)? Join Alexion Pharmaceuticals, Inc. as they host their…

HPP AND ME Live Zoom Chat

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Register for your spot today! Join us on September 24th at 3 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and…

2024 Cannonball 5K Run, Roll, or Stroll

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It’s time to Run, Roll, or Stroll! Registration for Soft Bones 3rd annual Cannonball 5K Run, Roll or Stroll is NOW OPEN! From September 29,…

Midwest 2 Region Zoom Meeting and Chat

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Do you live in Kentucky, Michigan, Ohio, or West Virginia?   Join Region Leads, Nichole Macknight and Sharon Talkington for a Midwest 2 Zoom Chat…

Southeast Region Zoom Meeting and Chat

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Do you live in Alabama, Georgia, Florida, Mississippi, North Carolina, South Carolina, or Tennessee?   Join Region Leads, Blynda Kellner and Scott Galvin, for a…

Appy Hour

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The myHPP app was developed by patients and physicians to transform patient care and inform hypophosphatasia research. It puts patients in charge of tracking their…