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HPP AND ME Live Zoom Chat

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Register for your spot today! Join us on November 21st at 2 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and…

Appy Hour

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The myHPP app was developed by patients and physicians to transform patient care and inform hypophosphatasia research. It puts patients in charge of tracking their…

STRENSIQ Perspectives

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Gain a new perspective on treatment!   Join Alexion, AstraZeneca on October 30th at 7:00 PM Eastern for a virtual meeting on STRENSIQ. Attendees will…

Behind the Mystery of Hypophosphatasia

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We are excited to share that our very own Deborah Fowler and Cindy Reasor will be featured on “Behind the Mystery of Hypophosphatasia”.   Behind…

Behind the Mystery of Hypophosphatasia

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We are excited to share that our very own Deborah Fowler and Cindy Reasor will be featured on “Behind the Mystery of Hypophosphatasia”.   Behind…

Appy Hour

Online

The myHPP app was developed by patients and physicians to transform patient care and inform hypophosphatasia research. It puts patients in charge of tracking their…

Southeast Region Zoom Meeting and Chat

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Do you live in Alabama, Georgia, Florida, Mississippi, North Carolina, South Carolina, or Tennessee?   Join Region Leads, Blynda Kellner and Scott Galvin, for a…

Midwest 2 Region Zoom Meeting and Chat

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Do you live in Kentucky, Michigan, Ohio, or West Virginia?   Join Region Leads, Nichole Macknight and Sharon Talkington for a Midwest 2 Zoom Chat…

2024 Cannonball 5K Run, Roll, or Stroll

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It’s time to Run, Roll, or Stroll! Registration for Soft Bones 3rd annual Cannonball 5K Run, Roll or Stroll is NOW LIVE! Now until October…