SUN-353 Physical and Cognitive Functioning Before and Six Months After Initiating Enzyme Replacement Therapy for an Adult with Hypophosphatasia: A Case Study
To read more please click on the link below.
Read Article
To read more please click on the link below.
Read Article
If you would like to make a donation to Soft Bones in honor of Cass, please click the button below! Donate Here Cass with her…
If you would like to make a donation to Soft Bones in honor of August, please click the button below! Donate Here My name is…
On December 21, 2011 our daughter Clara B. was born; at the time we believed she was a beautiful healthy baby girl. Little did we…
When I found out I was pregnant, the thought of my innocent little baby having an ultra-rare disease never crossed my mind. I was asking myself questions like “Is it going to be a boy or a girl?”, “Am I going to be a good mother?”, “What am I going to name him/her?”. Then during …
When I found out I was pregnant, the thought of my innocent little baby having an ultra-rare disease never crossed my mind. I was asking…
Mail Address
The US Hypophosphatasia Foundation
141 Hawkins Place, #267
Boonton, NJ 07005, USA.
Organization
Programs
Community
Office Address
1719 NJ-10, Suite 315
Parsippany, NJ 07054
Disclaimer: This Website is owned by Soft Bones, Inc. All materials contained in this Website (the “Materials”) are either owned by or licensed to us and are protected by intellectual property and other laws. We retain all proprietary rights to the Materials. This Website is copyrighted. All rights are reserved. Except as expressly authorized by us, any use, copy, reproduction, display, performance, modification or retransmission of the Materials is strictly prohibited.
Responses