Study supports gene therapy as a promising treatment for soft bone disease
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On December 21, 2011 our daughter Clara B. was born; at the time we believed she was a beautiful healthy baby girl. Little did we…
My name is Cami Rush and I am the mother to three children. I have an 18 year old son, Connor (diagnosed with HPP around 18…
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They are identical mirror twins who overcame all odds to survive their arrival. Isabella & Julia were born at 35 weeks and 6 days. Brought…
If you would like to make a donation to Soft Bones in honor of August, please click the button below! Donate Here My name is…
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