Study supports gene therapy as a promising treatment for soft bone disease

To read more please click the link below.
View News Article
To read more please click the link below.
View News Article
On December 21, 2011 our daughter Clara B. was born; at the time we believed she was a beautiful healthy baby girl. Little did we…
My name is Cami Rush and I am the mother to three children. I have an 18 year old son, Connor (diagnosed with HPP around 18…
If you would like to make a donation to Soft Bones in honor of August, please click the button below! Donate Here My name is…
To read more please click the link below. View News Article
When I found out I was pregnant, the thought of my innocent little baby having an ultra-rare disease never crossed my mind. I was asking myself questions like “Is it going to be a boy or a girl?”, “Am I going to be a good mother?”, “What am I going to name him/her?”. Then during …
The US Hypophosphatasia Foundation
141 Hawkins Place, #267
Boonton, NJ 07005, USA.
Organization
Programs
Community
Responses