Study supports gene therapy as a promising treatment for soft bone disease

On December 21, 2011 our daughter Clara B. was born; at the time we believed she was a beautiful healthy baby girl. Little did we…

My name is Cami Rush and I am the mother to three children. I have an 18 year old son, Connor (diagnosed with HPP around 18…

If you would like to make a donation to Soft Bones in honor of August, please click the button below! Donate Here My name is…

They are identical mirror twins who overcame all odds to survive their arrival. Isabella & Julia were born at 35 weeks and 6 days. Brought…