Study supports gene therapy as a promising treatment for soft bone disease Denise Goodbar June 7, 2021 0 Comments To read more please click the link below. View News Article
Patient of the Month- Stephen A. If you would like to donate to Soft Bones in honor of Stephen, please click the button below! Donate Here Walking the Walk: My Journey… Margaret Robb July 1, 2025 0 Comments
Patient of the Month- Alison S. If you would like to donate to Soft Bones in honor of Alison, please click the button below! Donate Here Hi, I’m Alison, and I’m… Margaret Robb May 1, 2025 0 Comments
Isabella and Julia They are identical mirror twins who overcame all odds to survive their arrival. Isabella & Julia were born at 35 weeks and 6 days. Brought… Taralyn Naslonski November 6, 2020 0 Comments
Living with HPP: Cami My name is Cami Rush and I am the mother to three children. I have an 18 year old son, Connor (diagnosed with HPP around 18… Taralyn Naslonski November 6, 2020 0 Comments
Patient of the Month- Peyton W. If you would like to make a donation to Soft Bones in honor of Peyton, please click the button below! Donate Here Hi! My name… Denise Goodbar August 25, 2023 0 Comments
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