Study supports gene therapy as a promising treatment for soft bone disease Denise Goodbar June 7, 2021 0 Comments Print 🖨 PDF 📄To read more please click the link below. View News Article
Patient of the Month- Stephen A. Print 🖨 PDF 📄If you would like to donate to Soft Bones in honor of Stephen, please click the button below! Donate Here Walking the… Margaret Robb July 1, 2025 0 Comments
Patient of the Month- Alison S. Print 🖨 PDF 📄If you would like to donate to Soft Bones in honor of Alison, please click the button below! Donate Here Hi, I’m… Margaret Robb May 1, 2025 0 Comments
Isabella and Julia Print 🖨 PDF 📄They are identical mirror twins who overcame all odds to survive their arrival. Isabella & Julia were born at 35 weeks and… Taralyn Naslonski November 6, 2020 0 Comments
Living with HPP: Cami Print 🖨 PDF 📄My name is Cami Rush and I am the mother to three children. I have an 18 year old son, Connor (diagnosed with… Taralyn Naslonski November 6, 2020 0 Comments
A Family’s Fight Against HPP Print 🖨 PDF 📄On December 21, 2011 our daughter Clara B. was born; at the time we believed she was a beautiful healthy baby girl.… Taralyn Naslonski November 6, 2020 0 Comments
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