Childhood Hypophosphatasia: to Treat or Not to Treat

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My name is Cindy. I was diagnosed with Hypophosphatasia before I was 2yrs old. This was back in the early 1970’s. They didn’t know much…
Hi, we are twin sisters Amy and Suzanne, we have been dealing with symptoms of HPP for a lifetime. Our diagnosis seemed as though it…
When I was born in 1968, my parents assumed everything was fine. They took me home and being her 1st child, my mom thought everything…
I would guess my HPP journey must have started over 10 years ago, when I began having issues with multiple things. I started with what…
In December of 2016 our eleven year old son was diagnosed with Hypophosphatasia (HPP). I could not even say the name correctly at first, let…
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