Childhood Hypophosphatasia: to Treat or Not to Treat

softbones October 28, 2020

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Categories: Scientific Publications

Tags: alkaline phosphatase, asfotase alfa, Biomarkers, bone, Childhood, enzymopathy, Inborn error of metabolism, inorganic pyrophosphate, mineralization, pyridoxal phosphate, Rickets, Vitamin B6

Living with HPP: Cindy

My name is Cindy. I was diagnosed with Hypophosphatasia before I was 2yrs old. This was back in the early 1970’s. They didn’t know much…

Taralyn Naslonski November 6, 2020

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Patients of the Month- Amy and Suzanne

Hi, we are twin sisters Amy and Suzanne, we have been dealing with symptoms of HPP for a lifetime. Our diagnosis seemed as though it…

wpengine June 8, 2022

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Blynda’s Journey with HPP

When I was born in 1968, my parents assumed everything was fine. They took me home and being her 1st child, my mom thought everything…

Taralyn Naslonski November 6, 2020

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Patient of the Month- Connor Eli H.

If you would like to make a donation to Soft Bones in honor of Connor Eli, please click the button below! Donate Here Connor’s mom…

Denise Goodbar September 27, 2023

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Living with HPP: Pennie

I would guess my HPP journey must have started over 10 years ago, when I began having issues with multiple things. I started with what…

Taralyn Naslonski November 6, 2020

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Mail Address (P.O Box)
The US Hypophosphatasia Foundation
141 Hawkins Place, #267
Boonton, NJ 07005, USA.

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1719 NJ-10, Suite 315
Parsippany, NJ 07054

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