Childhood Hypophosphatasia: to Treat or Not to Treat
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My name is Cindy. I was diagnosed with Hypophosphatasia before I was 2yrs old. This was back in the early 1970’s. They didn’t know much…
Hi, we are twin sisters Amy and Suzanne, we have been dealing with symptoms of HPP for a lifetime. Our diagnosis seemed as though it…
When I was born in 1968, my parents assumed everything was fine. They took me home and being her 1st child, my mom thought everything…
If you would like to make a donation to Soft Bones in honor of Connor Eli, please click the button below! Donate Here Connor’s mom…
My name is Cami Rush and I am the mother to three children. I have an 18 year old son, Connor (diagnosed with HPP around 18…
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The US Hypophosphatasia Foundation
141 Hawkins Place, #267
Boonton, NJ 07005, USA.
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1719 NJ-10, Suite 315
Parsippany, NJ 07054
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