Childhood Hypophosphatasia: to Treat or Not to Treat
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My name is Cindy. I was diagnosed with Hypophosphatasia before I was 2yrs old. This was back in the early 1970’s. They didn’t know much…
Hi, we are twin sisters Amy and Suzanne, we have been dealing with symptoms of HPP for a lifetime. Our diagnosis seemed as though it…
When I was born in 1968, my parents assumed everything was fine. They took me home and being her 1st child, my mom thought everything…
I would guess my HPP journey must have started over 10 years ago, when I began having issues with multiple things. I started with what…
If you would like to make a donation to Soft Bones in honor of Connor Eli, please click the button below! Donate Here Connor’s mom…
Mail Address
The US Hypophosphatasia Foundation
141 Hawkins Place, #267
Boonton, NJ 07005, USA.
Office Address
1719 NJ-10,
Parsippany, NJ 07054
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