Clinical Profiles of Children with Hypophosphatasia prior to Treatment with Enzyme Replacement Therapy: An Observational Analysis from the Global HPP Registry
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Impact of muscular symptoms and/or pain on disease characteristics, disability, and quality of life in adult patients with hypophosphatasia: A cross-sectional analysis from the Global HPP Registry
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Deklyn’s Story
When my husband and I got pregnant with our first baby, it never crossed my mind that something could possibly be wrong with my child.…
Deklyn’s Story
When my husband and I got pregnant with our first baby, it never crossed my mind that something could possibly be wrong with my child.…
Patient of the Month- Cass S.
If you would like to make a donation to Soft Bones in honor of Cass, please click the button below! Donate Here Cass with her…
Living with HPP- Joann
This is me, Joann. Living with a rare disease. Hiding for years in my DNA. It snuck up on me in the prime of my…
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