Clinical Profiles of Children with Hypophosphatasia prior to Treatment with Enzyme Replacement Therapy: An Observational Analysis from the Global HPP Registry
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Impact of muscular symptoms and/or pain on disease characteristics, disability, and quality of life in adult patients with hypophosphatasia: A cross-sectional analysis from the Global HPP Registry
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Patient of the Month- Cass S.
If you would like to make a donation to Soft Bones in honor of Cass, please click the button below! Donate Here Cass with her…
Deklyn’s Story
When my husband and I got pregnant with our first baby, it never crossed my mind that something could possibly be wrong with my child.…
Deklyn’s Story
When my husband and I got pregnant with our first baby, it never crossed my mind that something could possibly be wrong with my child.…
Living with HPP: Cami
My name is Cami Rush and I am the mother to three children. I have an 18 year old son, Connor (diagnosed with HPP around 18…
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