Foundation Grantee Spotlight: Soft Bones
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Month: November 2020
Journaling My Hypophosphatasia- Storytime Narrated Video
Journaling My Hypophosphatasia- Storytime Narrated Video Please click below to read more Journaling My Hypophosphatasia- Storytime Narrated Video
HPP: Assembling and Coordinating Your Personal Care Team Webinar
On October 30, 2019 Soft Bones held a webinar featuring Drs. Jill Simmons and Kathryn Dahir from Vanderbilt University Medical Center as they explain how…
The Emotional Effects of Living with a Chronic Rare Disease
Adrianna Tuomi, a licensed clinical social worker and Soft Bones Community Member and Region Lead will be presenting a webinar on the psychological effects of…
HPP- A Clinical Overview
What is HPP? with Deborah Sittig, Founder and Caregiver of Son with HPP and Dr. Cheryl Rockman-Greenberg, MD, CM, FRCPC, FCCMG
