Taking a Rare Disease to School

WRITTEN BY JULIA C. If you sat in a class with me, there are a few things you might notice right away. I talk a…

Hello, My name is Morgan Salomon, and I am 16 years old, and I’d like to tell you a little bit about me and my…

My name is Sherri Palackdharry, I have Hypophosphatasia along with two of my daughters, Maya, 16 and Syreeta, 21. Our journey began when Maya was…

When I was born in 1968, my parents assumed everything was fine. They took me home and being her 1st child, my mom thought everything…

Hi Everyone,  Instead of Rachel and I (Christine) writing two separate stories, we thought that since our lives are so intertwined, it is best to…