Patient of the Month- Scarlett P.
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Meet Nisha P!
Meet Nisha P. Hello, my name is Nisha P. I was diagnosed with adolescent-onset hypophosphatasia (HPP) in March of 2024, at the age of 49.…
Caregiver Corner – Beth
1. What is your relationship to HPP? My husband was diagnosed with hypophosphatasia (HPP). He was frustrated because he knew there was something more to…
Patient of the Month- Ryan V.
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Patient of the Month- Nikki W.
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Alkaline Phosphatase: Placental and Tissue-nonspecific lsoenzymes Hydrolyze Phosphoethanolamine, Inorganic Pyrophosphate, and Pyridoxal 5′-Phosphate Substrate Accumulation in Carriers of Hypophosphatasia Corrects during Pregnancy
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Key Learnings from Clinical Research and Real World Evidence on Asfotase Alfa Effectiveness in Hypophosphatasia10 Years Post-Approval
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Medical Management of Hypophosphatasia: Review of Data on Asfotase Alfa (March, 2025) Kathryn McCrystal Dahir and Nancy S. Dunbar
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Patient of the Month- Stephen A.
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Patient of the Month- Cleo H.
If you would like to donate to Soft Bones in honor of Cleo, please click the button below! Donate Here When Cleo was about 2…