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HPP AND ME Zoom Meeting

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  Join the HPP AND ME community members in a live chat via  Zoom on Wednesday, April 12th, at 8:00 p.m. EDT! Come together and…

HPP TeleECHO: ALPL Variant Database

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Join our HPP TeleECHO: ALPL Variant Database on March 10th, at 12PM EST, presented by Dr. Wolfgang Hogler. For more information, contact us at ECHO@SoftBones.org…

HPP AND ME Tutorial #2

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  Join Soft Bones HPP AND ME community for a tutorial! March 1, 2023 SESSION 2: (7:00 p.m.) https://us06web.zoom.us/meeting/register/tZwof-ugqzoiHdygHj7Wi4DKOmB9PADf8Q5F  

HPP AND ME Tutorial #1

Online

Join Soft Bones HPP AND ME community for a tutorial! March 1, 2023 SESSION 1: (1:00 p.m.)  https://us06web.zoom.us/meeting/register/tZUvfuyhqT4sHtVfikHsMID5seFKxt_6sPG5  

Rare Disease Day 2023

Online

Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. SHARE YOUR COLOURS

HPP TeleECHO: Eye Findings in Hypophosphatasia

Online

Join our HPP TeleECHO: Eye Findings in Hypophosphatasia on January 13th, 2023 at 12PM EST, presented by Mark S. Rollo, O.D.Dr. For more information, contact…

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The US Hypophosphatasia Foundation
141 Hawkins Place, #267
Boonton, NJ 07005, USA.

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