Understanding the Roles of PANTHERx Rare and Alexion, AstraZeneca Rare Disease OneSource™ Denise Goodbar November 3, 2021 0 Comments Print 🖨 PDF 📄Please download and view this fact sheet with the link below. Download Fact Sheet
Patient of the Month- Alison S. Print 🖨 PDF 📄If you would like to donate to Soft Bones in honor of Alison, please click the button below! Donate Here Hi, I’m… Margaret Robb May 1, 2025 0 Comments
Living with HPP: Cami Print 🖨 PDF 📄My name is Cami Rush and I am the mother to three children. I have an 18 year old son, Connor (diagnosed with… Taralyn Naslonski November 6, 2020 0 Comments
Patient of the Month- Frey H. Print 🖨 PDF 📄If you would like to donate to Soft Bones in honor of Frey, please click the button below! Donate Here My name… Margaret Robb November 18, 2025 0 Comments
Leaky Gut Fact Sheet Print 🖨 PDF 📄Please download and view this fact sheet with the link below. Download Fact Sheet emma_richter December 8, 2022 0 Comments
Patients of the Month- Amy and Suzanne Print 🖨 PDF 📄Hi, we are twin sisters Amy and Suzanne, we have been dealing with symptoms of HPP for a lifetime. Our diagnosis seemed… wpengine June 8, 2022 0 Comments
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