Profile of Asfotase Alfa in the Treatment of Hypophosphatasia: Design, Development, and Place in Therapy
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Meet Blynda Kellner Relationship to HPP: I was diagnosed with HPP around 6 months old. Joined: I found Soft Bones, I think in 2015. I’m…
They are identical mirror twins who overcame all odds to survive their arrival. Isabella & Julia were born at 35 weeks and 6 days. Brought…
My HPP story started at a very young age. I was quite young and our bedroom was upstairs, and the bathroom was downstairs. I would…
My name is Cami Rush and I am the mother to three children. I have an 18 year old son, Connor (diagnosed with HPP around 18…
If you would like to make a donation to Soft Bones in honor of Judith, please click the button below! Donate Here I started life…
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The US Hypophosphatasia Foundation
141 Hawkins Place, #267
Boonton, NJ 07005, USA.
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1719 NJ-10,
Parsippany, NJ 07054
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