Perinatal and Childhood HPP: Dr. Gottesman- (2022 Soft Bones Virtual Meeting)

My name is Cami Rush and I am the mother to three children. I have an 18 year old son, Connor (diagnosed with HPP around 18…
When I was born in 1968, my parents assumed everything was fine. They took me home and being her 1st child, my mom thought everything…
Hi, my name is Danielle and my children Grayson (8yrs) and Briley (4yrs) have odonto/mild childhood Hypophosphatasia. We live in Austin, TX. My family and…
Hi, we are twin sisters Amy and Suzanne, we have been dealing with symptoms of HPP for a lifetime. Our diagnosis seemed as though it…
If you would like to make a donation to Soft Bones in honor of Evan, please click the button below! Donate Here My husband Will…
The US Hypophosphatasia Foundation
141 Hawkins Place, #267
Boonton, NJ 07005, USA.
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