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Hi, we are twin sisters Amy and Suzanne, we have been dealing with symptoms of HPP for a lifetime. Our diagnosis seemed as though it…
My Journey with my Soft Bones: The only hint my parents had that something was wrong with me was my teeth. My baby teeth had…
My HPP story started at a very young age. I was quite young and our bedroom was upstairs, and the bathroom was downstairs. I would…
My name is Cindy. I was diagnosed with Hypophosphatasia before I was 2yrs old. This was back in the early 1970’s. They didn’t know much…
When I was born in 1968, my parents assumed everything was fine. They took me home and being her 1st child, my mom thought everything…
Mail Address
The US Hypophosphatasia Foundation
141 Hawkins Place, #267
Boonton, NJ 07005, USA.
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Office Address
1719 NJ-10, Suite 315
Parsippany, NJ 07054
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