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Hi, we are twin sisters Amy and Suzanne, we have been dealing with symptoms of HPP for a lifetime. Our diagnosis seemed as though it…
When I was born in 1968, my parents assumed everything was fine. They took me home and being her 1st child, my mom thought everything…
My Journey with my Soft Bones: The only hint my parents had that something was wrong with me was my teeth. My baby teeth had…
My name is Cindy. I was diagnosed with Hypophosphatasia before I was 2yrs old. This was back in the early 1970’s. They didn’t know much…
We are all told to stay away from “Dr. Google”; however, in the case of our son’s diagnosis of Hypophosphatasia (HPP), we were glad that…
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