Neurological Symptoms in Hypophosphatasia

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My name is Cindy. I was diagnosed with Hypophosphatasia before I was 2yrs old. This was back in the early 1970’s. They didn’t know much…
Hi, we are twin sisters Amy and Suzanne, we have been dealing with symptoms of HPP for a lifetime. Our diagnosis seemed as though it…
I became aware of HPP when I was about 38 years old, but in retrospect, I’ve been on this journey for a long time –…
I became aware of HPP when I was about 38 years old, but in retrospect I’ve been on this journey for a long time –…
This is me, Joann. Living with a rare disease. Hiding for years in my DNA. It snuck up on me in the prime of my…
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