Neurological Symptoms in Hypophosphatasia
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Hi, we are twin sisters Amy and Suzanne, we have been dealing with symptoms of HPP for a lifetime. Our diagnosis seemed as though it…
My name is Cindy. I was diagnosed with Hypophosphatasia before I was 2yrs old. This was back in the early 1970’s. They didn’t know much…
Hi, I am Nellie and this is my HPP story:Â I absolutely love spending time with my family. My husband and I have two sons,…
I became aware of HPP when I was about 38 years old, but in retrospect, I’ve been on this journey for a long time –…
This is me, Joann. Living with a rare disease. Hiding for years in my DNA. It snuck up on me in the prime of my…
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The US Hypophosphatasia Foundation
141 Hawkins Place, #267
Boonton, NJ 07005, USA.
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1719 NJ-10,
Parsippany, NJ 07054
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