The Journey to HPP Diagnosis

At fifteen weeks pregnant my husband and I decided to have an elective ultrasound performed for gender confirmation at our local OB/GYN office in Jamestown,…
If you would like to make a donation to Soft Bones in honor of Judith, please click the button below! Donate Here I started life…
This is me, Joann. Living with a rare disease. Hiding for years in my DNA. It snuck up on me in the prime of my…
Hi, we are twin sisters Amy and Suzanne, we have been dealing with symptoms of HPP for a lifetime. Our diagnosis seemed as though it…
My name is Sherri Palackdharry, I have Hypophosphatasia along with two of my daughters, Maya, 16 and Syreeta, 21. Our journey began when Maya was…
The US Hypophosphatasia Foundation
141 Hawkins Place, #267
Boonton, NJ 07005, USA.
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