Key Learnings from Clinical Research and Real World Evidence on Asfotase Alfa Effectiveness in Hypophosphatasia10 Years Post-Approval Margaret Robb July 29, 2025 0 Comments To read more please click on the link below. Read Article
Patient of the Month- Alison S. If you would like to donate to Soft Bones in honor of Alison, please click the button below! Donate Here Hi, I’m Alison, and I’m… Margaret Robb May 1, 2025 0 Comments
Patients of the Month- Amy and Suzanne Hi, we are twin sisters Amy and Suzanne, we have been dealing with symptoms of HPP for a lifetime. Our diagnosis seemed as though it… wpengine June 8, 2022 0 Comments
Patient of the Month- Stephen A. If you would like to donate to Soft Bones in honor of Stephen, please click the button below! Donate Here Walking the Walk: My Journey… Margaret Robb July 1, 2025 0 Comments
Patient of the Month- Carol L. My HPP story started at a very young age. I was quite young and our bedroom was upstairs, and the bathroom was downstairs. I would… emma_richter February 1, 2023 0 Comments
Living with HPP: A St. Louis Shriner’s Trip Hi, my name is Danielle and my children Grayson (8yrs) and Briley (4yrs) have odonto/mild childhood Hypophosphatasia. We live in Austin, TX. My family and… Taralyn Naslonski November 6, 2020 0 Comments
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