Hypophosphatasia Misdiagnosed as Osteoporosis in a Young Girl

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I was 22 years old when you were born and had a kindergartner, your brother, as well. I knew something was going on with you,…
Hi, we are twin sisters Amy and Suzanne, we have been dealing with symptoms of HPP for a lifetime. Our diagnosis seemed as though it…
This is me, Joann. Living with a rare disease. Hiding for years in my DNA. It snuck up on me in the prime of my…
Not long ago, Becky R. and her husband adopted a little baby girl, Mei Mei, from China. When she was first adopted, doctors were worried…
Hi! I’m Denise and I was diagnosed with childhood-onset hypophosphatasia (HPP) at age 50. As a child, I remember that all my permanent teeth…
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