Gene Therapy Webinar

On October 30, 2019 Soft Bones held a webinar featuring Drs. Jill Simmons and Kathryn Dahir from Vanderbilt University Medical Center as they explain how…
They are identical mirror twins who overcame all odds to survive their arrival. Isabella & Julia were born at 35 weeks and 6 days. Brought…
Hi, I am Nellie and this is my HPP story: I absolutely love spending time with my family. My husband and I have two sons,…
Presented by The Soft Bones Foundation. Do you have questions about your family’s diagnosis of Hypophosphatasia? Are you uncertain what the risk is for other…
My name is Cami Rush and I am the mother to three children. I have an 18 year old son, Connor (diagnosed with HPP around 18…
The US Hypophosphatasia Foundation
141 Hawkins Place, #267
Boonton, NJ 07005, USA.
Organization
Programs
Community
Responses