Gene Therapy Webinar
Related Articles
HPP: Assembling and Coordinating Your Personal Care Team Webinar
On October 30, 2019 Soft Bones held a webinar featuring Drs. Jill Simmons and Kathryn Dahir from Vanderbilt University Medical Center as they explain how…
Isabella and Julia
They are identical mirror twins who overcame all odds to survive their arrival. Isabella & Julia were born at 35 weeks and 6 days. Brought…
Patient of the Month- Nellie S.
Hi, I am Nellie and this is my HPP story: I absolutely love spending time with my family. My husband and I have two sons,…
HPP Genetics Boot Camp – Learning More About ALPL Gene Changes and HPP in Families
Presented by The Soft Bones Foundation. Do you have questions about your family’s diagnosis of Hypophosphatasia? Are you uncertain what the risk is for other…
Living with HPP: Cami
My name is Cami Rush and I am the mother to three children. I have an 18 year old son, Connor (diagnosed with HPP around 18…
Responses