EXPRESS: Clinical and molecular findings in children and young adults with persistent low alkaline phosphatase levels
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My HPP story started at a very young age. I was quite young and our bedroom was upstairs, and the bathroom was downstairs. I would…
If you would like to make a donation to Soft Bones in honor of Cass, please click the button below! Donate Here Cass with her…
My name is Sara and I have Hypophosphatasia (HPP). I am an individual with a rare disease, a fiancé and mother to two toddlers, a…
If you would like to make a donation to Soft Bones in honor of Judith, please click the button below! Donate Here I started life…
When I found out I was pregnant, the thought of my innocent little baby having an ultra-rare disease never crossed my mind. I was asking myself questions like “Is it going to be a boy or a girl?”, “Am I going to be a good mother?”, “What am I going to name him/her?”. Then during …
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