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Have you or a loved one been diagnosed with hypophosphatasia (HPP)? Join Alexion Pharmaceuticals, Inc. as they host their HPP Empowered virtual educational event on…
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Events
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1 event,Rare Disease Day is just around the corner. Are you ready? This year, getting involved is easier than ever. Visit our Rare Disease Day page… |
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Calling all HPP members from Alaska, Idaho, Montana, Northern California, Oregon, or Washington? Join Region Leads, Haley T. & Scarlett P., for a Zoom Chat… |
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Calling all HPP members from Alabama, Florida, Georgia, Mississippi, North Carolina, South Carolina, or Tennessee? Join Region Leads, Blynda K. and Tess O., for… |
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Calling all new HPP patients and individuals new to Soft Bones. Please join us for our New Patient Orientation on March 18th at 12…
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Register for your spot today! Join us on March 18, 2026, at 8 PM Eastern for an HPP AND ME Zoom Chat. Connect with others… |
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🚨 RSVP Needed for TAC Art Session 🚨 Calling all Teen Advisory Council members! Join us on March 23rd at 8 PM Eastern… |
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