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X-WR-CALDESC:Events for Soft Bones
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DTSTART;TZID=America/Halifax:20260912T173000
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UID:13914-1789234200-1789248600@softbones.org
SUMMARY:4th Annual Denim and Diamonds Fundraiser - Registration Now Open!
DESCRIPTION:Registration is now open for the 4th Annual Denim and Diamonds Fundraiser! \n  \nThe Soft Bones’ Annual Denim and Diamonds event will be held later this year to soak up the late-summer rays and the harvest season. Join us on Saturday\, September 12th\, at Alstede Farms as we enjoy the crisp air and the peak of the harvest season. It’s the perfect time to dust off your denim\, add a little sparkle\, and Two Step for a great cause. \n  \nThere will be: \n🤠Live Music and Dancing \n🍖 BBQ \n💎Silent Auction \n  \nDate: September 12\, 2026\nLocation: Alstede Farms\, 100 Rte 24\, Chester\, NJ 07930\nTime: 5:30 PM – 9:30 PM \n  \nRegister HERE. \n  \nInterested in donating a Silent Auction item or being a sponsor? Please contact Jessica at Jessica@softbones.org for more information.
URL:https://softbones.org/event/4th-annual-denim-and-diamonds-fundraiser-save-the-date/
LOCATION:Harvest Hall at Alstede Farms\, 100 Rte 24\, Chester\, 07930\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260917T190000
DTEND;TZID=Europe/London:20260917T200000
DTSTAMP:20260821T151846Z
CREATED:20260821T151732Z
LAST-MODIFIED:20260821T151846Z
UID:16262-1789671600-1789675200@softbones.org
SUMMARY:HPP AND ME Live UK Zoom Chat - September 17th\, 2026 at 7 PM GMT
DESCRIPTION:Register for your spot today! \n\n\nJoin us on September 17th at 7 PM GMT for an HPP AND ME UK Zoom Chat. Connect with others and share your experiences with HPP. Registration is required. We hope to see you there! \nClick here to register.
URL:https://softbones.org/event/hpp-and-me-live-uk-zoom-chat-september-17th-2026-at-7-pm-gmt/
LOCATION:Online
ORGANIZER;CN="Cindy R.":MAILTO:cindy@softbones.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260919T210000
DTEND;TZID=America/New_York:20260919T230000
DTSTAMP:20260819T182248Z
CREATED:20260720T010016Z
LAST-MODIFIED:20260819T182248Z
UID:16252-1789851600-1789858800@softbones.org
SUMMARY:Join Us for a Southwest Region Zoom Meeting on September 19\, 2026 at 9 PM Eastern
DESCRIPTION:Do you live in California\, Nevada\, Utah\, Arizona\, New Mexico\, or Hawaii? \nJoin Region Leads Amy B.\, Sue K.\, & Adam W. for a Zoom Meeting on September 19\, 2026 9 PM Eastern. All Southwest Region patients and caregivers are welcome to connect and chat.  \n📅 Registration is required. Be sure to reserve your spot HERE! \nOnce you register\, you will receive the Zoom join link directly via email from Zoom. We’d love to see you there! \nThis meeting is sponsored in part by Alexion\, AstraZeneca Rare Disease.
URL:https://softbones.org/event/join-us-for-a-southwest-region-zoom-meeting-on-may-21-2026-at-9-pm-eastern/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20260923T190000
DTEND;TZID=America/Halifax:20260923T200000
DTSTAMP:20260825T202848Z
CREATED:20260825T202848Z
LAST-MODIFIED:20260825T202848Z
UID:16276-1790190000-1790193600@softbones.org
SUMMARY:HPP Empowered: September 23rd\, 2026 at 7:00 PM Eastern
DESCRIPTION:Have you or a loved one been diagnosed with hypophosphatasia (HPP)? \n\nJoin Alexion Pharmaceuticals\, Inc. as they host their HPP Empowered virtual educational event on Wednesday\, September 23rd\, at 7:00 PM ET. \nRegister HERE! \n\n\nPresented by Alexion AstraZeneca Rare Disease.
URL:https://softbones.org/event/hpp-empowered-september-23rd-2026-at-700-pm-eastern/
LOCATION:Online
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260924T200000
DTEND;TZID=America/New_York:20260924T210000
DTSTAMP:20260821T152339Z
CREATED:20260821T152339Z
LAST-MODIFIED:20260821T152339Z
UID:16266-1790280000-1790283600@softbones.org
SUMMARY:HPP AND ME Live Zoom Chat - September 24th\, 2026 at 8 PM Eastern
DESCRIPTION:Register for your spot today! \n\n\nJoin us on September 24th at 8 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and share your experiences with HPP. Registration is required. We hope to see you there! \nClick here to register.
URL:https://softbones.org/event/hpp-and-me-live-zoom-chat-september-24th-2026-at-8-pm-eastern/
LOCATION:Online
ORGANIZER;CN="Cindy R.":MAILTO:cindy@softbones.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260926T110000
DTEND;TZID=America/New_York:20260926T140000
DTSTAMP:20260817T220621Z
CREATED:20260806T184812Z
LAST-MODIFIED:20260817T220621Z
UID:15769-1790420400-1790431200@softbones.org
SUMMARY:Join Us for a Midwest 1 Region In-Person Meeting on September 26\, 2026 11 AM Eastern
DESCRIPTION:Do you live in Illinois\, Indiana\, Iowa\, Minnesota\, or Wisconsin?  \nCalling all Midwest 1 Region HPP members. Meet us in Greenwood\, IN! \nRegion Lead Cindy R. will be hosting an in-person meeting on Saturday\, September 26\, 2026\, starting at 11 AM Eastern. Lunch will be provided. OneSource Case Manager Nichole Bennett will be there to answer questions. \n📅 Registration is required and closes September 12th. Register HERE. \nThis meeting is sponsored in part by Alexion\, AstraZeneca Rare Disease.
URL:https://softbones.org/event/join-us-for-a-midwest-1-region-in-person-meeting-on-september-26-2026-11-am-eastern/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260928T100000
DTEND;TZID=America/New_York:20260928T180000
DTSTAMP:20260506T174151Z
CREATED:20251104T133638Z
LAST-MODIFIED:20260506T174151Z
UID:13324-1790589600-1790618400@softbones.org
SUMMARY:REGISTRATION IS NOW OPEN - 18th Annual Golf Classic and 3rd Annual Pickleball Tournament
DESCRIPTION:Registration is Now Open! \nRegister now for the 18th Annual Soft Bones Golf Classic and 3rd Annual Pickleball Classic\, taking place on Monday\, September 28\, 2026\, at the world-class Somerset Hills Country Club in Bernardsville\, New Jersey. \nWhether you’re teeing off\, playing pickleball\, or cheering from the sidelines\, your presence and generosity amplify hope for families battling HPP.  \nRegister: HERE \nNot a golfer or pickleball player? Consider one of our sponsorships to show your support or to highlight your business. \n  \nFor registration or event inquiries\, please contact Jessica Adams.
URL:https://softbones.org/event/18th-annual-golf-classic-and-3rd-annual-pickleball-tournament-save-the-date/
LOCATION:Somerset Hills Country Club\, 180 Mine Mount Rd\, Bernardsville\, New Jersey\, 07924
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