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SUMMARY:TAC Meeting: Take Charge of Your Health April 13\, 2026 at 8 PM Eastern
DESCRIPTION:🚨 RSVP Needed for next TAC session🚨  \n  \nCalling all Teen Advisory Council members! Join us on April  13th at 8 PM Eastern for our next TAC night. Please RSVP to the email or respond to our text message. Come ready to brainstorm how you can be your own advocate. Don’t worry\, we’ll keep this fun with trivia games along the way. You don’t want to sit this one out. \n  \nInterested in joining TAC? Fill out the form\, HERE. TAC is sponsored in part by Alexion\, AstraZeneca Rare Disease.
URL:https://softbones.org/event/tac-meeting-take-charge-of-your-health-april-13-2026-at-8-pm-eastern/
LOCATION:Online
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260414T130000
DTEND;TZID=America/New_York:20260414T140000
DTSTAMP:20260409T185944
CREATED:20260323T160130Z
LAST-MODIFIED:20260323T160615Z
UID:14034-1776171600-1776175200@softbones.org
SUMMARY:HPP AND ME Live Zoom Chat - April 14th at 1 PM Eastern
DESCRIPTION:Register for your spot today! \n\n\nJoin us on April 14th at 1 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and share your experiences with HPP. Registration is required. We hope to see you there! \nClick here to register.
URL:https://softbones.org/event/hpp-and-me-live-zoom-chat-april-14th-at-1-pm-eastern/
LOCATION:Online
ORGANIZER;CN="Cindy R.":MAILTO:cindy@softbones.org
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DTSTART;TZID=America/New_York:20260416T200000
DTEND;TZID=America/New_York:20260416T210000
DTSTAMP:20260409T185944
CREATED:20260323T160450Z
LAST-MODIFIED:20260323T160450Z
UID:14037-1776369600-1776373200@softbones.org
SUMMARY:HPP AND ME Live Zoom Chat - April 16th at 8 PM Eastern
DESCRIPTION:Register for your spot today! \n\n\nJoin us on April 16th at 8 PM Eastern for an HPP AND ME Zoom Chat. Connect with others and share your experiences with HPP. Registration is required. We hope to see you there! \nClick here to register.
URL:https://softbones.org/event/hpp-and-me-live-zoom-chat-april-16th-at-8-pm-eastern/
LOCATION:Online
ORGANIZER;CN="Cindy R.":MAILTO:cindy@softbones.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260421T190000
DTEND;TZID=UTC:20260421T200000
DTSTAMP:20260409T185944
CREATED:20260408T185759Z
LAST-MODIFIED:20260408T185909Z
UID:14071-1776798000-1776801600@softbones.org
SUMMARY:HPP AND ME UK Live Zoom Chat - April 21\, 2026 at 7 PM GMT
DESCRIPTION:Attention all UK HPP members! \nSoft Bones is hosting an HPP AND ME Zoom Chat for all patients\, caregivers\, and families living in the UK! Join Ash F. and Meryl C. as they host a meeting on April 21\, 2026\, at 7 PM GMT (Greenwich Mean Time). We’d love to see you there! \nRegistration is required. Please register HERE.\nJoin the HPP AND ME UK Forum: HERE
URL:https://softbones.org/event/hpp-and-me-uk-live-zoom-chat-april-21-2026-at-7-pm-gmt/
LOCATION:Online
ORGANIZER;CN="Cindy R.":MAILTO:cindy@softbones.org
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BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20260425T110000
DTEND;TZID=America/Halifax:20260425T130000
DTSTAMP:20260409T185944
CREATED:20260305T184556Z
LAST-MODIFIED:20260326T133622Z
UID:13917-1777114800-1777122000@softbones.org
SUMMARY:Join Us for a Northeast In-Person Meeting - April 25\, 2026 at 11 AM Eastern
DESCRIPTION:🎉 Registration is now open! \n  \nDo you live in Connecticut\, DC\, Delaware\, Maine\, Maryland\, Massachusetts\, New Hampshire\, New Jersey\, New York\, Pennsylvania\, Rhode Island\, Vermont\, or Virginia? \n  \nJoin us for the Northeast Region In-Person Meeting on April 25 at 11 AM Eastern.  \n  \nRegion Leads Amy W.\, Judith H.\, and Laura T. will host a gathering at Dave & Buster’s near Times Square\, where a light lunch will be provided. OneSource Case Manager will be in attendance to answer any HPP-related questions you may have. It’s a great chance to meet others from your region\, share experiences\, and build community. \n  \n📅 Registration is required and closes April 11\, 2026. Be sure to reserve your spot HERE! \n  \nThis meeting is sponsored in part by Alexion\, AstraZeneca Rare Disease.
URL:https://softbones.org/event/join-us-for-a-northeast-in-person-meeting-april-25-2026-at-11-am-eastern/
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