Disease characteristics, disability, and quality of life in adult HPP patients with muscular symptoms and pain without skeletal manifestations – a cross-sectional analysis from the Global HPP Registry

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Impact of muscular symptoms and/or pain on disease characteristics, disability, and quality of life in adult patients with hypophosphatasia: A cross-sectional analysis from the Global HPP Registry

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Hi, we are twin sisters Amy and Suzanne, we have been dealing with symptoms of HPP for a lifetime. Our diagnosis seemed as though it…

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If you would like to make a donation to Soft Bones in honor of Judith, please click the button below! Donate Here I started life…

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When I was born in 1968, my parents assumed everything was fine. They took me home and being her 1st child, my mom thought everything…

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Hello, My name is Morgan Salomon, and I am 16 years old, and I’d like to tell you a little bit about me and my…

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