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    Category: News

    MS RDAC Sign-On letter

    To read more please click the link below. View News Article

    Taralyn Naslonski January 28, 2022
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    Aruvant Announces ARU-2801 Data Presentations at the American Society for Bone and Mineral Research (ASBMR) 2021 Annual Meeting

    To read more please click the link below. View News Article

    Denise Goodbar September 22, 2021
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    For Those Living With HPP and/or on Strensiq: Learn More About the COVID-19 Vaccines – September 2021

    To read more please click the link below. View News Article

    Denise Goodbar September 17, 2021
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    What Is Hypophosphatasia? An Overview of This Rare Genetic Disorder

    To read more please click the link below. View News Article

    Denise Goodbar August 12, 2021
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    The Emotional Aspects of Hypophosphatasia: A Guide for Families

    To read more please click the link below. View News Article

    Denise Goodbar July 22, 2021
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    Photographs reveal people behind rare illnesses

    To read more please click the link below. View News Article

    Denise Goodbar July 13, 2021
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    Study supports gene therapy as a promising treatment for soft bone disease

    To read more please click the link below. View News Article

    Denise Goodbar June 7, 2021
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    Mel Williams was diagnosed with Hypophosphatasia at 52 – despite living with symptoms for her whole life

    To read more please click the link below. View News Article

    Denise Goodbar March 10, 2021
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    COVID-19 Vaccine Statement- January 2021

    To read more please click the link below. View News Article

    Bonnie Starr January 23, 2021
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    Foundation Grantee Spotlight: Soft Bones

    To read more please click the link below. View News Article

    Denise Goodbar November 17, 2020
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