News – Page 2 – Soft Bones

Rarity

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Denise Goodbar March 6, 2022

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MS RDAC Sign-On letter

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Taralyn Naslonski January 28, 2022

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Aruvant Announces ARU-2801 Data Presentations at the American Society for Bone and Mineral Research (ASBMR) 2021 Annual Meeting

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Denise Goodbar September 22, 2021

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For Those Living With HPP and/or on Strensiq: Learn More About the COVID-19 Vaccines – September 2021

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Denise Goodbar September 17, 2021

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What Is Hypophosphatasia? An Overview of This Rare Genetic Disorder

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Denise Goodbar August 12, 2021

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The Emotional Aspects of Hypophosphatasia: A Guide for Families

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Denise Goodbar July 22, 2021

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Photographs reveal people behind rare illnesses

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Denise Goodbar July 13, 2021

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Study supports gene therapy as a promising treatment for soft bone disease

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Denise Goodbar June 7, 2021

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Mel Williams was diagnosed with Hypophosphatasia at 52 – despite living with symptoms for her whole life

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Denise Goodbar March 10, 2021

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COVID-19 Vaccine Statement- January 2021

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Bonnie Starr January 23, 2021

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Mail Address
The US Hypophosphatasia Foundation
141 Hawkins Place, #267
Boonton, NJ 07005, USA.

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1719 NJ-10, Suite 315
Parsippany, NJ 07054

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