Category: HPP Stories

In the spring of 2020, I was officially diagnosed with Hypophosphatasia through genetic testing. In retrospect, the signs and symptoms have been evident since my…

My name is Nele from Belgium and I have hypophosphatasia. The first time I heard about HPP the look on my face was at about…

My name is Amy. I am a 53 year old newly diagnosed member of the HPP community. I have been living with a mild infantile…

Hi, my name is Laura Vondrick and I’m writing on behalf of my daughter Leia who was diagnosed with HPP in July 2020. Our family…

Born in 1960 with broken bones and a large fontanel they knew something was wrong. By the age of 3 months and my failure to…

My journey with HPP began when I was 16 but I just didn’t know it. My husband, Donnie and I have been together since we…

Hello, my name is Cheryl Jackson and my journey with HPP began last December when I was diagnosed at the age of 48, but as…

My name is Cami Rush and I am the mother to three children. I have an 18 year old son, Connor (diagnosed with HPP around 18…

I became aware of HPP when I was about 38 years old, but in retrospect I’ve been on this journey for a long time –…

Have you ever had the ultrasound tech stop what she was doing, and say she needed to go get the doctor? Well, I have. And…