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Category: HPP Stories

Patient of the Month- Morgan S.

Hello, My name is Morgan Salomon, and I am 16 years old, and I’d like to tell you a little bit about me and my…

emma_richter October 31, 2022
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Patient of the Month- Nicole S.

I was born premature, broke bones easily throughout childhood, and had a few setbacks with development. My parents didn’t think much of it thinking that…

Denise Goodbar October 5, 2022
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Patient of the Month- Denise K.

  Hi! I’m Denise and I was diagnosed with childhood-onset hypophosphatasia (HPP) at age 50. As a child, I remember that all my permanent teeth…

Emma September 1, 2022
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Patient of the Month- Nellie S.

Hi, I am Nellie and this is my HPP story:  I absolutely love spending time with my family. My husband and I have two sons,…

wpengine August 4, 2022
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Patient of the Month- Chris D.

I became aware of HPP when I was about 38 years old, but in retrospect, I’ve been on this journey for a long time –…

wpengine June 30, 2022
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Patients of the Month- Amy and Suzanne

Hi, we are twin sisters Amy and Suzanne, we have been dealing with symptoms of HPP for a lifetime. Our diagnosis seemed as though it…

wpengine June 8, 2022
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Living with HPP- Sierra

Hello..my name is Shelly and I am Sierra’s mother..I had gotten pregnant with Sierra and thought everything was fine..the ultrasounds of her came back perfect…

Taralyn Naslonski June 24, 2021
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Living with HPP- Courtney

In the spring of 2020, I was officially diagnosed with Hypophosphatasia through genetic testing. In retrospect, the signs and symptoms have been evident since my…

Taralyn Naslonski March 1, 2021
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Living with HPP- Nele

My name is Nele from Belgium and I have hypophosphatasia. The first time I heard about HPP the look on my face was at about…

Taralyn Naslonski January 18, 2021
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Living with HPP- Amy W.

My name is Amy. I am a 53 year old newly diagnosed member of the HPP community. I have been living with a mild infantile…

Taralyn Naslonski December 28, 2020
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141 Hawkins Place, #267
Boonton, NJ 07005, USA.

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