Patient of the Month- Chris D.
I became aware of HPP when I was about 38 years old, but in retrospect, I’ve been on this journey for a long time –…
Category: HPP Stories
Patients of the Month- Amy and Suzanne
Hi, we are twin sisters Amy and Suzanne, we have been dealing with symptoms of HPP for a lifetime. Our diagnosis seemed as though it…
Living with HPP- Sierra
Hello..my name is Shelly and I am Sierra’s mother..I had gotten pregnant with Sierra and thought everything was fine..the ultrasounds of her came back perfect…
Living with HPP- Courtney
In the spring of 2020, I was officially diagnosed with Hypophosphatasia through genetic testing. In retrospect, the signs and symptoms have been evident since my…
Living with HPP- Nele
My name is Nele from Belgium and I have hypophosphatasia. The first time I heard about HPP the look on my face was at about…
Living with HPP- Amy W.
My name is Amy. I am a 53 year old newly diagnosed member of the HPP community. I have been living with a mild infantile…
Living with HPP- Leia
Hi, my name is Laura Vondrick and I’m writing on behalf of my daughter Leia who was diagnosed with HPP in July 2020. Our family…
Living with HPP: Sue K.
Born in 1960 with broken bones and a large fontanel they knew something was wrong. By the age of 3 months and my failure to…
My Journey with HPP Began When I Was 16
My journey with HPP began when I was 16 but I just didn’t know it. My husband, Donnie and I have been together since we…
Living with HPP: Cheryl
Hello, my name is Cheryl Jackson and my journey with HPP began last December when I was diagnosed at the age of 48, but as…
