Patient of the Month- Sharon M.
My Journey with my Soft Bones: The only hint my parents had that something was wrong with me was my teeth. My baby teeth had…
Category: HPP Stories
Patient of the Month- Rachel S. and Christine S.
Hi Everyone, Instead of Rachel and I (Christine) writing two separate stories, we thought that since our lives are so intertwined, it is best to…
Patient of the Month- Morgan S.
Hello, My name is Morgan Salomon, and I am 16 years old, and I’d like to tell you a little bit about me and my…
Patient of the Month- Nicole S.
I was born premature, broke bones easily throughout childhood, and had a few setbacks with development. My parents didn’t think much of it thinking that…
Patient of the Month- Denise K.
Hi! I’m Denise and I was diagnosed with childhood-onset hypophosphatasia (HPP) at age 50. As a child, I remember that all my permanent teeth…
Patient of the Month- Nellie S.
Hi, I am Nellie and this is my HPP story: I absolutely love spending time with my family. My husband and I have two sons,…
Patient of the Month- Chris D.
I became aware of HPP when I was about 38 years old, but in retrospect, I’ve been on this journey for a long time –…
Patients of the Month- Amy and Suzanne
Hi, we are twin sisters Amy and Suzanne, we have been dealing with symptoms of HPP for a lifetime. Our diagnosis seemed as though it…
Living with HPP- Sierra
Hello..my name is Shelly and I am Sierra’s mother..I had gotten pregnant with Sierra and thought everything was fine..the ultrasounds of her came back perfect…
Living with HPP- Courtney
In the spring of 2020, I was officially diagnosed with Hypophosphatasia through genetic testing. In retrospect, the signs and symptoms have been evident since my…
