Patient of the Month- Evan W.
If you would like to make a donation to Soft Bones in honor of Evan, please click the button below! Donate Here My husband Will…
Category: HPP Stories
Patient of the Month- Haley G.
My name is Haley Gast and I have been diagnosed and living with HPP for just over 33 years. Prior to being diagnosed at 6…
Patient of the Month- Quinn H.
My name is Quinn Hoover and I am living with HPP. I was born January 12th, 2009, in Omaha, Nebraska. The first few years of…
Patient of the Month- Carol L.
My HPP story started at a very young age. I was quite young and our bedroom was upstairs, and the bathroom was downstairs. I would…
Patient of the Month- Sharon M.
My Journey with my Soft Bones: The only hint my parents had that something was wrong with me was my teeth. My baby teeth had…
Patient of the Month- Rachel S. and Christine S.
Hi Everyone, Instead of Rachel and I (Christine) writing two separate stories, we thought that since our lives are so intertwined, it is best to…
Patient of the Month- Morgan S.
Hello, My name is Morgan Salomon, and I am 16 years old, and I’d like to tell you a little bit about me and my…
Patient of the Month- Nicole S.
I was born premature, broke bones easily throughout childhood, and had a few setbacks with development. My parents didn’t think much of it thinking that…
Patient of the Month- Denise K.
Hi! I’m Denise and I was diagnosed with childhood-onset hypophosphatasia (HPP) at age 50. As a child, I remember that all my permanent teeth…
Patient of the Month- Nellie S.
Hi, I am Nellie and this is my HPP story: I absolutely love spending time with my family. My husband and I have two sons,…
