Bone turnover and mineral metabolism in adult patients with hypophosphatasia treated with asfotase alfa
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Hi, we are twin sisters Amy and Suzanne, we have been dealing with symptoms of HPP for a lifetime. Our diagnosis seemed as though it…
If you would like to make a donation to Soft Bones in honor of Cass, please click the button below! Donate Here Cass with her…
They are identical mirror twins who overcame all odds to survive their arrival. Isabella & Julia were born at 35 weeks and 6 days. Brought…
If you would like to make a donation to Soft Bones in honor of Judith, please click the button below! Donate Here I started life…
My HPP story started at a very young age. I was quite young and our bedroom was upstairs, and the bathroom was downstairs. I would…
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The US Hypophosphatasia Foundation
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Boonton, NJ 07005, USA.
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Parsippany, NJ 07054
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