• About WordPress
    • WordPress.org
    • Documentation
    • Learn WordPress
    • Support
    • Feedback
  • Log In
  • Events
    • View Calendar
  • DONATE
  • Home Page
  • Printable HPP Resources
  • Patient Stories
  • Webinars
  • Podcasts
  • Emergency Preparedness
  • News
  • Scientific Publications
Soft Bones Logo
  • About Us
    • Contact Us
  • Newly Diagnosed?
    • Printable HPP Resources
  • Programs and Services
    • Patient Support
    • Youth and Teen
    • Clinician Support
    • Patient Education
    • Policy and Partnerships
  • HPP Community
    • 2025 National Patient Meeting
    • HPP AND ME
    • Bone Zone
    • Region Lead Program
    • Caregiver Corner
    • Meet Me Monday
    • Calendar of Events
  • Research
  • Soft Bones Store
  • Get Involved
    • Calendar of Events
    • Shop for a Cause
    • Ways to Donate
    • Volunteer
    Sign in
    Generic selectors
    Exact matches only
    Search in title
    Search in content
    Post Type Selectors
    Filter by Categories
    Caregiver Corner
    Childrens Resources
    Emergency
    Fact Sheets
    HPP Stories
    Meet Me Monday
    News
    Newsletters
    Physicians
    Physicians1
    Physicians2
    Podcasts
    Scientific Publications
    Scientific Publications (new)
    Scientific Publications (old)
    Soft Bones Publications
    Translated Soft Bones Publications
    Webinars
    • About Us
      • Contact Us
    • Newly Diagnosed?
      • Printable HPP Resources
    • Programs and Services
      • Patient Support
      • Youth and Teen
      • Clinician Support
      • Patient Education
      • Policy and Partnerships
    • HPP Community
      • 2025 National Patient Meeting
      • HPP AND ME
      • Bone Zone
      • Region Lead Program
      • Caregiver Corner
      • Meet Me Monday
      • Calendar of Events
    • Research
    • Soft Bones Store
    • Get Involved
      • Calendar of Events
      • Shop for a Cause
      • Ways to Donate
      • Volunteer
    Generic selectors
    Exact matches only
    Search in title
    Search in content
    Post Type Selectors
    Filter by Categories
    Caregiver Corner
    Childrens Resources
    Emergency
    Fact Sheets
    HPP Stories
    Meet Me Monday
    News
    Newsletters
    Physicians
    Physicians1
    Physicians2
    Podcasts
    Scientific Publications
    Scientific Publications (new)
    Scientific Publications (old)
    Soft Bones Publications
    Translated Soft Bones Publications
    Webinars

    Author: Margaret Robb

    Patient of the Month- Nikki W.

    If you would like to donate to Soft Bones in honor of Nikki, please click the button below!  Donate Here Hi! I am Nikki. I…

    Margaret Robb August 1, 2025
    0 Comments

    Alkaline Phosphatase: Placental and Tissue-nonspecific lsoenzymes Hydrolyze Phosphoethanolamine, Inorganic Pyrophosphate, and Pyridoxal 5′-Phosphate Substrate Accumulation in Carriers of Hypophosphatasia Corrects during Pregnancy

    To read more please click on the link below. Read Article

    Margaret Robb July 31, 2025
    0 Comments

    Key Learnings from Clinical Research and Real World Evidence on Asfotase Alfa Effectiveness in Hypophosphatasia10 Years Post-Approval

    To read more please click on the link below. Read Article

    Margaret Robb July 29, 2025
    0 Comments

    Medical Management of Hypophosphatasia: Review of Data on Asfotase Alfa (March, 2025) Kathryn McCrystal Dahir and Nancy S. Dunbar

    To read more please click on the link below. Read Article

    Margaret Robb July 10, 2025
    0 Comments

    Patient of the Month- Stephen A.

    If you would like to donate to Soft Bones in honor of Stephen, please click the button below!  Donate Here Walking the Walk: My Journey…

    Margaret Robb July 1, 2025
    0 Comments

    Patient of the Month- Cleo H.

    If you would like to donate to Soft Bones in honor of Cleo, please click the button below!  Donate Here When Cleo was about 2…

    Margaret Robb June 1, 2025
    0 Comments

    Caregiver Corner – Cass S.

    1. What is your relationship to HPP? My middle son (Jackson) and I both have HPP. We found out my diagnosis in late 2020 while…

    Margaret Robb May 28, 2025
    0 Comments

    Patient of the Month- Alison S.

    If you would like to donate to Soft Bones in honor of Alison, please click the button below!  Donate Here Hi, I’m Alison, and I’m…

    Margaret Robb May 1, 2025
    0 Comments

    Patient of the Month- Amedie P.

    If you would like to donate to Soft Bones in honor of Amedie, please click the button below!  Donate Here Hi!! My name is Amedie.…

    Margaret Robb April 1, 2025
    0 Comments

    Caregiver Corner – Kara S.

    1. What is your relationship to HPP? My son Quinn was diagnosed with HPP 13 years ago at the age of 3 after exhibiting symptoms since…

    Margaret Robb March 13, 2025
    0 Comments
    Load More
    • Facebook
    • Instagram
    August 2025
    M T W T F S S
     123
    45678910
    11121314151617
    18192021222324
    25262728293031
    « Jul    
    • Caregiver Corner
    • Childrens Resources
    • Emergency
    • Fact Sheets
    • HPP Stories
    • Meet Me Monday
    • News
    • Newsletters
    • Physicians
    • Physicians1
    • Physicians2
    • Podcasts
    • Scientific Publications
    • Scientific Publications (new)
    • Scientific Publications (old)
    • Soft Bones Publications
    • Translated Soft Bones Publications
    • Uncategorized
    • Webinars

    Mail Address (P.O Box)
    The US Hypophosphatasia Foundation
    141 Hawkins Place, #267
    Boonton, NJ 07005, USA.

    Organization

    • About Soft Bones
    • Fundraising
    • Soft Bones Store
    • Contact Us
    • About Soft Bones
    • Fundraising
    • Soft Bones Store
    • Contact Us

    Programs

    • Patient Education
    • Patient Support
    • Clinician Education
    • Patient Education
    • Patient Support
    • Clinician Education

    Community

    • Bone Zone
    • HPP AND ME
    • Get Involved
    • Calendar of Events
    • Bone Zone
    • HPP AND ME
    • Get Involved
    • Calendar of Events

    Office Address (Location for meetings and events)
    1719 NJ-10, Suite 315
    Parsippany, NJ 07054

    • Local: (973) 453-3093
    • Toll Free: (866) 827-9937
    • Contact Us
    Donate

    Follow Us on Social Media!

    Instagram Twitter Facebook Linkedin Youtube Spotify

    Disclaimer: This Website is owned by Soft Bones, Inc. All materials contained in this Website (the “Materials”) are either owned by or licensed to us and are protected by intellectual property and other laws. We retain all proprietary rights to the Materials. This Website is copyrighted. All rights are reserved. Except as expressly authorized by us, any use, copy, reproduction, display, performance, modification or retransmission of the Materials is strictly prohibited.