Asfotase alfa has a limited effect in improving the bowed limbs in perinatal benign hypophosphatasia: A case report
To read more please click on the link below.
Read Article
To read more please click on the link below.
Read Article
When I found out I was pregnant, the thought of my innocent little baby having an ultra-rare disease never crossed my mind. I was asking myself questions like “Is it going to be a boy or a girl?”, “Am I going to be a good mother?”, “What am I going to name him/her?”. Then during …
When I found out I was pregnant, the thought of my innocent little baby having an ultra-rare disease never crossed my mind. I was asking…
Have you ever had the ultrasound tech stop what she was doing, and say she needed to go get the doctor? Well, I have. And…
If you would like to make a donation to Soft Bones in honor of Emily, please click the button below! Donate Here Hi, this is…
At fifteen weeks pregnant my husband and I decided to have an elective ultrasound performed for gender confirmation at our local OB/GYN office in Jamestown,…
Mail Address
The US Hypophosphatasia Foundation
141 Hawkins Place, #267
Boonton, NJ 07005, USA.
Office Address
1719 NJ-10,
Parsippany, NJ 07054
Organization
Programs
Community
Responses