Diagnosis and treatment of adult hypophosphatasia: Still a big challenge?

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If you would like to donate to Soft Bones in honor of Evie, please click the button below! Donate Here This story is written by…
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When I was born in 1968, my parents assumed everything was fine. They took me home and being her 1st child, my mom thought everything…
When I found out I was pregnant, the thought of my innocent little baby having an ultra-rare disease never crossed my mind. I was asking…
Mail Address (P.O Box)
The US Hypophosphatasia Foundation
141 Hawkins Place, #267
Boonton, NJ 07005, USA.
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Office Address (Location for meetings and events)
1719 NJ-10, Suite 315
Parsippany, NJ 07054
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