World HPP Day 2024 – Soft Bones

World HPP Day is a time for the HPP community to come together and raise awareness about hypophosphatasia. Whether you’re living with HPP, a family member or friend, a caregiver, a researcher, or a healthcare professional we invite you to join us in fulfilling our mission.

Did you know that 2024 marks the 15th Anniversary of Soft Bones? On this World HPP Day, we celebrate the progress we’ve made but recognize how far we still have to go in understanding the impact of low alkaline phosphatase in the body.

This year’s theme is Together We Can.

“Together We Can” is a call to action that showcases the collective power of our community. TOGETHER WE CAN is a statement in itself. But also, it begs an answer – what can we do together?

Together we can EDUCATE!

Together we can IMPACT CHANGE!

Together we can CURE HPP!

There are many ways you can get involved. Learn more below.

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How to Get Involved

Make Some Noise on Social Media

Change your cover photo, your profile picture and/or share HPP fact cards on social media.

Click for Instructions

Reach out to Local Media

Let’s all be heard in the media! Download this guide to learn how you can share your story.

Download

Join the Cannonball 5K Run, Roll, or Stroll

Join us as we come together as a community to raise global awareness of HPP.

Learn More

Contest Alert!

Leading up to World HPP Day, we challenge you to download the myHPP app and track your symptoms. Every day you track, you can be entered for a chance to win a World HPP Day sweatshirt.

Click for Instructions

You’re Invited!

Join Cindy R. and Sue K. on October 30th from 8:30 PM - 10:30 PM Eastern for a spooktacular night of chats, costumes, and camaraderie!

View Invitation

$15 for 15 Years

We are celebrating 15 years with our $15 for 15 campaign. Donate $15 - or in increments of $15 - to help us reach our goal of $3,000. Together we can!

Learn How

Support Our Cause!

Order World HPP Day Swag

Snag your World HPP Day swag and show your support for the HPP Community!

Order Here

Shop for a Cause

We have several ongoing fundraisers for the holiday season. Browse our Shop for a Cause page where a portion of the proceeds goes to Soft Bones!

Shop Here

Donate to Soft Bones

Make a donation to Soft Bones Inc. or start a Facebook fundraiser anytime during October.

Donate Here

Social Media Downloads

Together We Can

Download and print the "Together We Can" visual and fill in the blank. Take a photo with the sign and share it on social media.

Shareable landscape "Together We Can"

World HPP Day: Together We Can

Download and print the "World HPP Day" visual. Snap a photo with the poster and share it on social media.

Shareable landscape "World HPP Day"

I Love Someone With HPP

Download and print the "I Love Someone With HPP" visual. Take a photo with the poster and share it on social media.

Shareable landscape "I Love Someone With HPP"

Together We Can FB/X Cover Photo

Download and update your FB and X cover photo on social media.

Shareable FB/X Cover Photo "Together We Can"

Together we can...

Submit a photo of you holding up the “Together we can…” sign to be featured on our social media page and annual collage! Email your photos to Info@SoftBones.org and tag us on social media!

Profile Pictures

Update your social media profile picture to raise HPP awareness! Click on the image of choice. Right-click to ‘save image as’ to your computer, or hold for 2 seconds to ‘save photo’ to mobile device. Together we can share and promote our #HPP story.

Fact Cards

Share these fact cards on your social media account to raise awareness. Click on the image of choice. Right-click to ‘save image as’ to your computer, or hold for 2 seconds to ‘save photo’ to mobile device. Together we can share facts about this rare disease.

Zoom/Google
Meet Background

Update your Zoom or Google Meet background to raise HPP awareness! Click on the image below. Right-click to ‘save image as’ to your computer, or hold for 2 seconds to ‘save photo’ to mobile device. Upload to any video session. Together we can share and promote our #HPP story.