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Living with HPP- Joann
This is me, Joann. Living with a rare disease. Hiding for years in my DNA. It snuck up on me in the prime of my…
Patient of the Month- Nellie S.
Hi, I am Nellie and this is my HPP story: I absolutely love spending time with my family. My husband and I have two sons,…
Patients of the Month- Amy and Suzanne
Hi, we are twin sisters Amy and Suzanne, we have been dealing with symptoms of HPP for a lifetime. Our diagnosis seemed as though it…
Ryan’s Story
We are all told to stay away from “Dr. Google”; however, in the case of our son’s diagnosis of Hypophosphatasia (HPP), we were glad that…
Patient of the Month- Alana S.
If you would like to donate to Soft Bones in honor of Alana, please click the button below! Donate Here I was born with several…
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