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Medical Management of Hypophosphatasia: Review of Data on Asfotase Alfa (March, 2025) Kathryn McCrystal Dahir and Nancy S. Dunbar

To read more please click on the link below. Read Article

Margaret Robb July 10, 2025
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Patient of the Month- Stephen A.

If you would like to donate to Soft Bones in honor of Stephen, please click the button below!  Donate Here Walking the Walk: My Journey…

Margaret Robb July 1, 2025
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Patient of the Month- Cleo H.

If you would like to donate to Soft Bones in honor of Cleo, please click the button below!  Donate Here When Cleo was about 2…

Margaret Robb June 1, 2025
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Caregiver Corner – Cass S.

1. What is your relationship to HPP? My middle son (Jackson) and I both have HPP. We found out my diagnosis in late 2020 while…

Margaret Robb May 28, 2025
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Patient of the Month- Alison S.

If you would like to donate to Soft Bones in honor of Alison, please click the button below!  Donate Here Hi, I’m Alison, and I’m…

Margaret Robb May 1, 2025
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Patient of the Month- Amedie P.

If you would like to donate to Soft Bones in honor of Amedie, please click the button below!  Donate Here Hi!! My name is Amedie.…

Margaret Robb April 1, 2025
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Caregiver Corner – Kara S.

1. What is your relationship to HPP? My son Quinn was diagnosed with HPP 13 years ago at the age of 3 after exhibiting symptoms since…

Margaret Robb March 13, 2025
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Patient of the Month- Rebecca

If you would like to donate to Soft Bones in honor of Rebecca, please click the button below!  Donate Here Sometimes the hardest things in…

Margaret Robb March 1, 2025
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Patient of the Month- Evie M.

If you would like to donate to Soft Bones in honor of Evie, please click the button below!  Donate Here This story is written by…

Margaret Robb February 1, 2025
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Patient of the Month- Cassi K.

If you would like to donate to Soft Bones in honor of Cassi, please click the button below!  Donate Here Hypophosphatasia Patient of the Month:…

Margaret Robb January 1, 2025
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